What is “informed consent” and why do I need it?
What is informed consent?
Informed consent is an ethical requirement for most research and must be considered and implemented throughout the research lifecycle, from planning to publication to sharing. Informed consent, whether in written or oral form, is needed for depositing datasets at Discuss Data. Missing informed consent may restrict the opportunities for data usage, publishing and sharing. If during the fieldwork consent forms were presented and informants chose not to give consent for the archiving and re-use of qualitative data, then the data cannot be published with Discuss Data.
DARIAH-EU provides a free Consent Form Wizard, a tool which guides you through a questionnaire that will consequently generate a General Data Protection Regulation (GDPR) compliant form for obtaining consent from data subjects, tailored to your specific purpose and the data categories you intend to collect.
Important note: If you don't have consent to publish the data, it is still possible to publish your data collection as "metadata only" - without the dataset itself. In this case, the metadata and the description of data collection will be published, but not the data files. Still, this would make it possible to find, discuss and cite your dataset with a DOI.
First steps: Overview
First steps for new users
- Edit License & Access
- Edit Metadata
- Edit Data Set Description & Add Tags
- Edit Dataset Description
- Dataset Publishing
- Edit Dataset Versions
- Manage Datafiles
- Edit Related Publications
- Data Set Upload
- Edit collaboration
- Edit Data Submission Agreement
- Best Practices for Data Submission
- Best Practices for the Documentation of Data Collection
- Checklist for the Documentation of Data Collection
- Best Practices for Discussion
- Best Practices for Curators
- Best Practices for Interviews
- Best Practices for Informed Consent
- Safeguarding Good Scientific Practice